The Ballad of Howard and Laura

A touching video has surfaced showing how hospice can help make life beautiful, even in its final days. Howard and Laura have been married for 73 years, and as their granddaughter Erin explains, “Laura (Grandma) is at a hospice facility making peace with her final days…I was lucky enough to capture this precious, heart-melting moment between the two of them. Howard (Grandpa) is singing to her their love song, the song that comforted her when he went away to fight in World War II.”

This picture of Howard and Laura was taken by their granddaughter, Erin Solari, and shared via Facebook.
This picture of Howard and Laura was taken by their granddaughter, Erin Solari, and shared via Facebook.

“It began to go viral and all the outpouring of love lifted everyone’s spirits… including Grandma’s!” Solari wrote. “They originally gave her just a week to live, but hospice eventually deemed her well enough to go back home to live out her remaining few days. As of this posting my beautiful Grandma Laura Virginia is still with us resting peacefully at home. Our family along with the wonderful people from hospice are taking care of her and making sure she remains as pain-free and comfortable as possible while she prepares for her nearing departure. We all thank you so much for the love and kind words.”

It is stories like this that reaffirm for me the importance of ensuring that all Americans have access to hospice, and are given the opportunity to plan for hospice  as an end-of-life option. The Care Planning Act, The Hospice Care Access Improvement Act, and the Palliative Care and Hospice Education Training Act (PCHETA) are all important legislative actions to support that can help ensure that more Americans can have beautiful end-of-life experiences like Howard and Laura.

Are you Registered to Vote?

HOSPICE VOTES
Today is National Register to Vote Day! Help hospice  be a voice at the polls and vote in legislators who support the Care Planning Act, PCHETA, the Hospice Care Access Improvement Act, and more!

Additionally, we know all of our Hospice Advocates pay close attention to the legislative battles in the Federal government, but many of the decisions that affect medical practice, reimbursement, patient access, and more are also fought on the state level. State and local elections get historically low turn-out, as do non-Presidential year elections, so if you have ever felt like your vote didn’t count….it certainly counts a lot more when a majority of other people are staying home! Make sure you get to those less-popular election days, and take today to make sure that your voter registration is up to date!

The Most Interesting Hospice Clinician in the World….

 

CTC Meme

 

We are counting down to the Clinical Team Conference in October in Grapevine, Texas! Our own Manager of Grassroots Advocacy, Tony Kudner, and Judi Lund Person, Vice President, Regulatory, Leadership, and Compliance will be in attendance! Obviously the conference touches on more than just advocacy and regulatory issues, but there are several offerings on that topic:

Regulatory & Compliance, Quality Assessment

Additionally, the Regulatory Queen Jennifer Kennedy will be holding Office Hours: make an appointment and get your most difficult regulatory questions answered in person! You might even get her autograph!

 

Have a Regulatory topic that you don’t see in the list of sessions at this year’s CTC? Let us know! We know a guy who knows a guy who works with Jennifer Kennedy….we may just be able to get you an answer. (Or you can just email her).

Busting Hospice Myths and Having Hard Conversations

All of us who work in the HPM field have heard some of the same misconceptions voiced by those who do not have a strong understanding of hospice or end-of-life care. The Moments of Life campaign is attempting to counter these myths with a touching collection of personal stories of how hospice has improved lives for patients and families.

 

In addition to the personal stories, they also have a very useful video summarizing the importance of Advanced Care Planning, and having those tough conversations:

 

While those of us here at HAN are working hard on the legislative and regulatory end, supporting the Care Planning Act, PCHETA, and Hospice Care Access Improvement Act, we salute those of you working hard with patients and families to have those difficult conversations, and guide them through their end-of-life choices. You inspire us daily with your dedication, and we are so proud to be working in Washington, DC on your behalf.

Legislative Update: 20 Cosponsors for HR3037!!


Whew, you guys are doing a great job with your in-district advocacy! We have hit 20 Cosponsors on HR, 3037, the Hospice Care Access and Improvement Act!

 

Here is the full list:

Do you see your Representative? Have you thanked them on social media for their support?
If you don’t see your Representative, have you called their office? Emailed them about HR3037? Posted something to their Facebook or tweeted at them with our link? These things make a difference!
We will soon be rolling out a brand new Action Center where you will be able to take action on this and other pending hospice and palliative care legislation. Stay tuned!