Congress Moves to Improve Advanced Illness Care

The Patient Choice and Quality Care Act was introduced to the House of Representatives on June 7th by Congressman Phil Roe (R-TN) and Congressman Earl Blumenauer (D-OR) and today in the Senate by Senators Mark Warner (D-VA) and Johnny Isakson (R-GA).

NHPCO and HAN strongly support this legislation. This legislation is a step forward for the hospice and palliative communities. The Patient Choice and Quality Care Act of 2017 (H.R. 2797) will give patients and families living with advanced and life-limiting illnesses access to the kind of information and services they need. This bicameral, bipartisan legislation directs the Center for Medicare and Medicaid Innovation to conduct an Advanced Illness Coordination Services demonstration.

This demonstration will support the following:

  • Allow an interdisciplinary team to provide early palliative care and wrap-around, home-based services to individuals with multiple and complex chronic conditions
  • Include at least one face-to-face encounter with a patient, family caregiver or legal guardian to discuss
    • the patient’s typical illness trajectory,
    • help the individual define and articulate goals of care and care preferences
    • Treatment options
  • Strengthen Advance directive portability by encouraging providers from difference states to follow one advance directive

Learn more about the Patient Choice and Quality Care Act and ask your Members of Congress to cosponsor this legislation.