Everyone has a role to play in speaking out for better hospice and palliative care policies. But for many providers, participating in legislative advocacy can be intimidating. How do you get started? Who has the time? Can you really make a difference? At this year’s NHPCO IDC Virtual Conference, three MyHospice Ambassadors discussed these issues, sharing their experiences and insights as frontline providers and frontline advocates.
NHPCO submitted a letter in response to the House Energy and Commerce Committee’s Health Subcommittee hearing on “Legislative Proposals to Support Patience Access to Telehealth Services.”
NHPCO submitted comments highlighting hospice and palliative care providers’ expertise and dedication to providing care at home in rural and underserved communities. As innovators in providing individualized care to patients and families at home, NHPCO encouraged the Committee to look to hospice and palliative care when considering how other providers can best deliver care and…
Trey Gibson encourages advocates to not shy away from showing emotions when telling their stories. “It’s okay to cry. Bring some tissues,” he says. “It’s hard for me to tell Emilie’s story without my nose twitching. I miss her terribly, and that’s okay.”
“Emilie’s illness felt like a race in many ways,” Trey Gibson recalls, “At one point during that race, someone asked me about how things were going, and I replied that I don’t like to lose.” After Emilie’s death, the Gibsons were determined to continue Emilie’s legacy. “My wife Candi and I just decided that we needed to keep running. We needed to contribute. We didn’t want our daughter to die in vain.”
In December 2023, the Centers for Medicare & Medicaid Services (CMS) published a request for information (RFI) on the Medicare Advantage (MA) Value-Based Insurance Design (VBID) Model. The RFI sought comment on various aspects of the VBID model, particularly hospice care and health equity, including hospice access, network adequacy requirements for Medicare Advantage Organizations (MAOs)…
NHPCO, The National Association for Home Care & Hospice (NAHC), The National Partnership for Healthcare and Hospice Innovation (NPHI), and LeadingAge partnered on a letter to Congress in opposition to using extension of the 2014 IMPACT Act to allocate resulting funds exclusively for non-hospice purposes.
NHPCO submitted a sign-on letter representing the needs, concerns, and experiences of over 80 organizations across the nation providing hospice and palliative care to rural and frontier communities. Highlighted issues included closure of partner providers and facilities, staffing shortages, staff safety, telehealth and broadband access, lower effective payment rates, and access to Medicare certified facilities.
For Immediate ReleaseDecember 19, 2023 President Carter Honored as the First-Ever Recipient of the Courageous Conversations Award (Alexandria, VA) – The Hospice Action Network (HAN), the advocacy affiliate group of the National Hospice and Palliative Care Organization (NHPCO), is pleased to announce its 2023 Hospice Action Network Angel Award Honorees. The HAN Angel Awards were…
The holiday season can be particularly difficult for those who have been impacted by loss and grief. It can include stressors like increased pressure to be happy or participate in activities. In this edition of the HAN blog, we offer advice for those who are coping with loss and those who know someone who is grieving this year.
